Sometimes when I see a person who is missing something, something like a limb, I wonder if they think people with all their limbs take them for granted far too often. I have wondered this for a long time, do I take my ability to walk and talk and hear and speak and write for granted? Recently I was thinking about this and realised that my skin is something that other people with normal skin might take for granted.
I have to moisturise after any contact with water, I have to sit in my stickiness after a shower until the moisturiser soaks in, even during winter, I have to only shower once every two days because I want to limit my contact with water, I have to spend money on all sorts of creams and ointments and find make up brands that suit my skin. And I’m sick of it. I’m sick of being constantly itchy all over. I’m sick of ripping into my own skin. I’m sick of moisturising. I’m sick of the consequences if I don’t. I want to swim in the ocean without pain. I want to be able to use an electric blanket without being insanely itchy. I want to get straight out of the shower and straight into warm clothes. I want to wear a perfum and spray it on my skin. I want to not care about the skincare or make up or laundry detergent brand I buy. I want to wear any kind of materials I want. I wish I didn’t have to apply moisturiser and creams so often!
And then, a video of a boy comes along, a boy whose skin basically burns itself off. A boy, who at 22, is wrapped in gauze everyday that takes hours to put on. A boy who has a short life expectancy because of his skin.
All of a sudden, I am humbled. I realise that while my struggles are annoying, and painful, I am still so well off. I am still pretty healthy and mobile. I am not going to take my skin for granted.
If you would like to read about James Dunn, who suffers RDEB, click HERE